There is nothing physically noticeable about how a child diagnosed with autism spectrum disorder (ASD) looks compared to their peers. However, as they continue developing, kiddos with ASD may communicate, learn, and interact differently from children their age.

As a parent you may start to notice speech delays, behavior differences, and changes in the way they interact with people around them. This doesn't mean there is something wrong with your child, they are simply neurodivergent. If you think your child may have ASD, this article will help point you in the right direction and simplify the diagnosis process.

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Where do I start?

It is recommended that all children are screened for autism during their 18- and 24-month checkup. If you aren't sure if your kiddo has been screened, you can request this from your pediatrician. While this test is important, it is NOT a complete diagnosis. If the screener indicates that you child may have a greater chance of having autism, you'll need to get a full medical evaluation.

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What is the evaluation process?

The evaluation must be conducted by a medical professional. This includes your pediatrician, a child psychologist, a pediatric neurologist, etc. Unfortunately, families often wait weeks or months before seeing a specialist. This is why it is important to know your rights.

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According to Autism Speaks,

"If your child is under the age of 36 months:

• He or she is entitled to an evaluation through your state’s office of Early Intervention, also referred to as “Birth to Three” or “Part C.”
• Federal law requires the local early intervention agency to perform a free assessment to determine if any child has a disability.
• The agency is required to complete an initial evaluation no later than 45 days after receiving written consent from you to assess your child."

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During the evaluation appointment, the healthcare provider will guide your child through activities appropriate for their age. Taking into account their development and behavioral history, the Doctor may ask questions, prompt conversation, and play games.

Because this process can take several hours, a follow-up appointment will be scheduled on a different day. During this visit, you will sit down with the healthcare provider and discuss the child's official diagnosis including their strengths and weaknesses. They should also take the time to recommend some resources and begin next steps.

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What should I do next?

During this appointment, you'll likely receive lots of paperwork. Some of the most important forms here are your CDE and referral. The comprehensive diagnostic evaluation (CDE) is a detailed document outlining your child's behavior and development compared to the national standard. Simply put, the confirmation of your child's diagnosis and what led the Doctor to that conclusion.

Often, different therapists, school systems, and healthcare professionals will request your CDE. NEVER give your original CDE documents away, you will need them throughout your child's life. Instead, send a copy to whomever made the request.

Your doctor likely also wrote a referral for therapies they believe will best help your child succeed. Some of the common ones are ABA, speech, and occupational therapy. While these therapies are not cures for autism, when started from an early age they help create foundational skills for your kiddo as they continue to grow.

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Getting diagnosed with autism is a lifechanging event for you family. That's why we are here to help you through every step of the process and point you in the right direction. Give us a call with questions anytime!